Tag Archives: Functional Movement Disorder

afterwords: Sex and the Wheelchair

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Dear Lovely Peeps,

A couple of weeks ago, the Sex and the Wheelchair post discussed some of the thoughts that have arisen from getting horny again after years of chronic illness.

I knew it was a post that would seriously embarrass my wife – seeing as she has more decorum than I do.

And I knew that sex is not a subject that everyone is comfortable discussing.

However, I went ahead and published the post because the matter has been in my thoughts; and I have been very surprised by the response that it has received.
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Sex and the Wheelchair

Sex and the Wheelchair - mightwar
 
 

I want to fuck my wife.

Yep, I said it. I want to fuck my wife.

In fact, I’d prefer to be doing that rather than writing this post. But unfortunately, no can do.

And that’s the problem right there.
 
 
I realise that many of you are now hurriedly backing away from your screens at this point, but I really need to talk about this.
 

*****

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Endure. Breathe. (Repeat)

I woke up sobbing.
With a loud cry forced out between twisted lips; and tears pushing themselves past closed lids, I came fully awake.

4.00am. Thursday, March 31st, 2011.

The day I was finally broken.

*****

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Inside I’m Dancing

There are parts of ourselves that are so well known to us, that they become an essential part of defining who we are and how we feel about our person.

My body … my physical self, is that to me.

– might war (Extract taken from ‘Muffled‘)

 
That is why this illness has had such a great impact on my sense of well-being.
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Crippled Conversations

What You will see, but be unable to understand:


 

-

 
What I will think, but be unable to say:
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Functional Movement Disorder :: #2.1 – Exploring the Symptoms

This post is part of a series discussing functional movement disorder.

A ‘functional movement disorder’ means that there is abnormal movement or positioning of part of the body due to the nervous system not working properly (but not due to an underlying neurological disease).

In plain English: there is a problem with the way your brain is sending messages to, and receiving messages from, your body about movement.

The disorder is also sometimes called Functional Neurological Disorder, Functional Neurological Symptoms or Dissociative Neurological Symptoms.

 
I had a hard time explaining what was happening to my body to friends, family and medical professionals. And until they saw the symptoms for themselves, they had a hard time understanding what I meant.

This post will continue taking a more detailed examination of what the symptoms actually look like: particularly pain, facial spasm and speech problems..
 
 
PLEASE NOTE: Your symptoms may be similar or different to mine. What I have done is focus on the main issue areas and explained them in terms of my personal experience: in the hope that giving you concrete examples will help you in understanding what may be happening with your body.
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Functional Movement Disorder :: #2 – Exploring the Symptoms

This post is part of a series discussing functional movement disorder.

A ‘functional movement disorder’ means that there is abnormal movement or positioning of part of the body due to the nervous system not working properly (but not due to an underlying neurological disease).

In plain English: there is a problem with the way your brain is sending messages to, and receiving messages from, your body about movement.

The disorder is also sometimes called Functional Neurological Disorder, Functional Neurological Symptoms or Dissociative Neurological Symptoms.

 
Following the introductory post explaining what functional movement disorders are and considering what to do when your symptoms manifest, I thought it might be useful to take a look at the symptoms themselves.

I had a hard time explaining what was happening to my body to friends, family and medical professionals. And until they saw the symptoms for themselves, they had a hard time understanding what I meant.

Therefore in this post, I shall be taking a more detailed examination of what the symptoms actually look like: particularly weakness & paralysis, tremor & spasm, contractures and gait problems.
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Functional Movement Disorder :: #1 – What Is It?

So you think you may have a movement disorder?

chronic illness ecard 6 
I’ve been thinking about the best way to tell you about what it’s like to have a Functional Movement Disorder – as discussed in last Friday’s post.

In truth, just writing about what my physical self and I go through hasn’t been easy. So I’ve decided to approach this from a more practical standpoint.

I’m going to publish a series of posts that follow the progression of my illness, so that you get an idea of what happened/happens. Within that, will be anecdotes about my experience, the different symptoms that arose and some pointers about what was done in response to what happened.

Hopefully, this format will be more helpful to anyone who is going through similar – or knows of someone who is. And I will share our learning so that you don’t have to reinvent the wheel – which hopefully means that you can get to support services more promptly to help you manage your illness.

This week, I’ll be focusing on what to do when your symptoms first manifest.
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